Hey kids. Did I ever tell you about the time I frightened the girl at the Time Warner Cable office with my misshapen face? Probably not, since it just happened yesterday.
First things first. We canceled cable. Because we are enlightened people who yearn to play chess and hold spirited political conversations rather than melt our brains with television.
Naaaah. It’s all part of Budgetopocolypse 2013. I’d watch Snapped marathons until my eyeballs bled if it was up to me. Fascinating. And it keeps the husband in line.
So. I woke up yesterday with the usual 38lbs of drooling toddler chunk sitting on my chest. The additional 48lbs wandered in a few minutes later and the day began. Except. I noticed my face felt kind of weird when I talked. I didn’t really think too much about it, what with the 86lbs of children earrings I was wearing into the kitchen to make breakfast but eventually (after milk milk cereal cereal smoothie smoothie I wanted the bulldozer spoon NO MINE NO MINE MOOOOOOOOOOM!) I made it to a mirror.
And. Oh. Em. Gee.
I was lumpy. Lumpy like Rocky Dennis. Remember him? The kid from Mask.
Awwww…that’s awful. Of course I didn’t REALLY look like Rocky Dennis. Just like I don’t REALLY have jowls like Winston Churchill. I just FEEL like I do.
Also…I loved Rocky Dennis. Remember the hot rock for the color red and the icy rock for the color blue? So sweet.
But I digress. Back to my face. Or what used to resemble my face. Lumpy. Like, big weird lumps under my skin. Forehead, chin, the bridge of my nose was swollen. My cheeks felt like they had 2 square inches of hard pads underneath them. I looked like one of those women who thought it would be a golly-gee-swell idea to get $50 collagen injections from a ‘doctor’ in a ‘clinic’ in South America. Only to be shocked later on to find out he had used donkey urine. I looked like Priscilla Presley…and not the Elvis Priscilla…
But wait…there’s more! Order your weird misshapen face right now and we’ll throw in a new mystery rash!
Gross, right? I know I publish a lot of weird pics but that’s mostly for anyone else ever looking for answers. And the occasional vasculitisophile (hey, I ain’t judging).
I call my rheum and explain the symptoms to his nurse. She calls me back and tells me that the doctor wants to see me the next day to check out my vasculitis (check it out, Doc…it’s STILL there!). As for the lumps and arm rash? He thinks it sounds like steroid induced acne and that I need to see my dermatologist as soon as possible to make sure.
First of all, ANOTHER gross side effect?? Second of all, it’s NOT acne. I had a wildly overactive sebaceous gland through my 20s so I know from acne. And this ain’t it.
Now if it was up to me I would have hidden in the house all day. It was that bad. But as you may have guessed…I miiight…just maaaaybe have a little problem with procrastination. And I MAY have put off returning the cable equipment until the last day. Of the 14 day return period. Oooof. AND we were out of milk. Double oooof. I had to lump it up and leave the house. No problem though, Time Warner has a big equipment return box right outside the office…I don’t even need to go in!
Except they don’t anymore. Which means me and Lumpy (I consider my face to be its own entity by this point) have to get both kids and all of the equipment out of the car, into the office and past the ‘Take A Number’ machine. It’s a machine that pops out tickets. It may as well be a chocolate covered clown juggling puppies.
I herd them into some chairs and YAY I’m the next number. Phew. I luck out a second time and get the world’s most uninterested ‘customer service’ girl who doesn’t even look up at me. Score. I heave the bag with all my equipment up onto the counter. She sighs a sigh that lets me know I’m perhaps the stupidest person that ever lived and informs me that I need to take everything out of the bag myself. No problem, lady, just keep staring at your nails…do not look at my face. I start to pull out the equipment. Modem…other computer thingy…dvr…remotes…oh, did I forget to mention that my other half had been kind enough to unhook and pack everything up for me the night before? Did I forget to mention that he didn’t dust or wipe off one thing so as I’m pulling out the equipment, herds of dust bunnies are stampeding and swirling through the air. Through. The. Air. Some of my hair is mixed in there. It’s pretty gross and embarrassing (hey…it’s been living under the desk behind a box!). This startles her. She looks up at my face. I see her eyes widen. I see her glance at the rash on my arms where my sleeves have fallen back because I’m literally trying to catch dust bunnies in the air. I’m half laughing and half apologizing and mumbling something about killing my husband. I look like a rashy fool. But an apologetic rashy fool. And what does she do? She reaches for her hand sanitizer. Twice. That girl stared at all of my weird crap and then she sanitized herself.
Now part of me doesn’t blame her. I’m obviously a mess. But the other part of me is pissed. So I stopped apologizing. I signed my receipt. Then I licked the side of her face and left.
Nooooo. But I wanted to.
Flash forward to this morning. I wake up and my face is back to normal! Yay! But my arms still look like I thought it was a good idea to reach into a fire. Booo. I drop the kids at school and head up to see the doctor.
Here’s the good news. I got taken off of 2 of my meds today. Wooot! I asked to be taken off of the Colcrys (the gout medicine). First of all, what is it really doing?? Second of all…it costs $225. A month. He agreed that we could stop it. He looked at my arms and immediately expressed concern that I was having an allergic reaction to the Plaquenal, so that is out too. Happy dance! Then we had a nice talk about steroid side effects. He restated that although this wasn’t steroid induced acne, it was a future possibility but I assured him that I was holding out for enough facial hair to grow a hipster mustache that I could diabolically twirl while tying young girls to railroad tracks. I also informed him that my face was getting fat to which he replied, “I know.” That’s it…I’m bringing the kids with me on the next visit. That’ll learn him.
Then it’s downstairs for more bloodwork and upstairs to my derm for skin biopsy #5…I’m getting pretty scar-o-licious. Don’t be jealous.
(Have I mentioned that I think my dermatologist might be 14 years old? The first time I had to stand in front of him in my underwear I half expected his mom to bust into the room and yell at me to put my clothes back on.)
Aaaaaanyway…I ask the him if this could be sun related?? We all laid on the grass on Sunday and looked for cloud pictures for a long time and even though I stayed in the shade, I have been reading that people with autoimmunes can be sun sensitive. He thinks it might be something called polymorphis light eruption. Basically women with ‘rheumatogical issues’ (oh I’ve got issues all right) have this problem in the spring when the sun is higher and hotter. Weird, right? It should stop happening by summer but he recommended some good sunscreens. But we’ll still wait for the biopsies for final results because it could still be a drug reaction. “We’re seeing more of that with Plaquenal users lately…it might be a manufacturing change.” Well that’s just fantastic.
Anyway, to make a loooong blog post even longer, something happened today that made me think of you guys. I had the sweetest Thai phlebotomist with an accent so thick I could barely understand her. Right as she was getting ready to take my blood another tech stuck her head into the room and asked her for help with a ‘difficult patient’ (of course I’m immediately picturing blood spraying everywhere). My tech started to take my blood but I told her to go help the other lady first. When she came back she gave me a hug and said, “You were so sweet to share, you were just so sweet to share. Thank you.” I thought that was a funny way to phrase it but then I thought about it and I realized she meant that she was thanking me for sharing my time. And that’s when I thought of you guys. The love and support I’ve received from this blog already have been overwhelming. I’m blown away with I see the number of people who have visited this page. You choose to take time out of your day to read this and I want you to know what that means to me. So thank you. You are so sweet to share.
P.S. I have my first appointment with a naturopathic doctor on May 7th! Yay!! It’s a 3 hour appointment and she sounds amazeballs!
P.P.S. I didn’t want to do my pantry today but I DID!!!! However I’ll blog about that tomorrow since this one got a little long-winded. But here is a quick pic: