She’s Got Jowls Like Churchill…

Here’s the good news.  Everything on my body has suddenly calmed down.  I feel like Truman in his little sailboat on the water…tossed around by crashing waves one moment only to be thrust into an eerie calm the next.

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Are you there, Vasculitis? It’s me, Danielle…

That’s good, right?  Hives gone. No waking up in the middle of the night to the feeling of blood vessels bursting in your legs (seriously the creepiest feeling ever).  No standing and talking to people while you repeatedly slap your stomach like a crazy person and they politely pretend not to notice (fact: stomach slapping is the best itch cure while face slapping continues to be the best bitch cure).

But it’s not good.  I mean, it’s ‘good’ but it’s dangerous.  Because this is where I get complacent.  I gave the doctor my big, heavy burden and he took it and squished it down into a nice neat package that I can easily fit into the side pocket of my diaper bag (where it will reign supreme amongst soggy goldfish crackers and old restaurant crayons).

But.  But But But.

Then I look in the mirror.  I look in the mirror and I see that girl with the puffy, jowly face of Churchill looking back at me.  But sadly, none of his wisdom.  Dark circles under her eyes.  Just different. And I remember that for all of the good that these meds are doing…they are affecting my body in other ways too.

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‘V is for Vasculitis!’ Don’t you just want to squish the face of one of the greatest leaders of our time? No? That’s just me then…

Then I grab a towel and clean the mirror and then the sinks and then I feed the fish and then I start to clean out my closet but when I carry something into the kitchen I decide to unload half of the dishwasher but then stop because maybe I’ll reorganize the silverware drawer first but when did I get this spoon? was it a wedding present? hey do I have that picture from our wedding that I love so much? I’ll go look in the office…oh my gosh all of this paperwork needs to be filed I’m going to do that right now but look! a box of cards and letters maybe I’ll sit down and read these but I can’t sit on the bed because look at all of this laundry that needs to be folded first okay I’ll fold the laundry and hey I never installed the hooks in the boys closet so they could hang up their own jackets and they really need to have more responsibility around here and I KNOW I’ll make a responsibility chart but I guess I need to go to Michaels and get poster board first so I’ll just get dressed and hey! my closet! maybe I should clean it out!  SQUIRREL!

The steroids make you a little agitated.  And skitzy.  If you can harness those powers you’d probably be able to take over the world (or at least actually complete a few Pinterest projects).  But if you’re a little scattered to begin with…well it makes it hard to really get anything DONE.

And then there is this side of it too…the medical bills start rolling in.  Actually, they do more like a creepy hunch shuffle up into your mailbox which you desperately try to ignore until you realize that you’re avoiding eye contact with your postal carrier who is clearly trying to signal to you that she CAN’T FIT ANYTHING ELSE INTO YOUR MAILBOX!

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POW! SLAP! KABLAM! Holy medical bills, Batman!

So I’m going to do something really hard.  I’m going to post pictures of my pantry.  Because that is my first start.  Food. Diet. Clean eating.  I going to post these pictures because I feel like it will make me more accountable.  And I give myself one week to change it.  Clean it out.  Start fresh.  I’m meeting with a naturopathic doctor too but this is my first start.

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Move along, judgey hippies…nothing to see here!

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Only focus on the delicious honey from Italy…ignore the Campbells soup can you see before you…

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Fair trade turbinado sugar…that wipes it all clean, right? Right?? Anyone…hello…

Anyhoos…look back next week for my pantry transformation and my first solid attempt at meal planning because my grocery bill is out. of. control.

On a lighter note…this scenario greeted me in the playroom.  Don’t you kind of want to party with these guys?  Viking Lego and Darth Hulk…what could go wrong??

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VADAR SMASH!

XO from The Dark Side

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12 thoughts on “She’s Got Jowls Like Churchill…

  1. Wow..its like how my brain feels…ping ball…bing, bing, bing. I’m a multi tasker who can’t quite finish the first. It’s comforting knowing I’m not the only bing….around.

  2. Ohhhhh guess what? I’m cured from the “I don’t like to read” declaration. Your blogs are so well written that I’m actually “reading and loving it” and I get sad when I get to the end. Xoxo

  3. I want to see you with the darth mask and hulk gloves..c’mon DO IT! Oh and holy medical bills is right….maybe you can do a “how to” on how to turn your medical bills into art in 5 easy steps! LOL.

    Love you sister!

    • NOOOOOOOOOOOOOOOOOOO!!!!!!!!! But honestly I have been trying to cut out all processed sugar so there has been a jar of Nutella languishing in my pantry…it feels lonely…I can just tell…

  4. sorry about your struggles with the prednisone.. I’m on it for a form of vasculitis too – Behcet’s Disease.. its nasty stuff, but for me so far its the only thing that really helps.
    That picture of Churchill cracked me up, though – I mean I feel like I actually look like that. Sometimes my face feels so swollen, I can see the edges of my cheeks around my eyes, or it feels like my chin is too puffy to turn my head down fully.. and I haven’t put on that much weight – more just swollen! lol
    Hope it eases out.. sometimes I find it`s worse when the dose is first adjusted, and then it levels out.. take care!

    • You get it!! You really do!! And the edges of my cheeks around the eyes made me laugh, that’s just where I am right now. Every morning I get a little laughing shock when I look in the mirror. I am so sorry about the Behcet’s…I know another girl that has it and when I looked it up it gave me the ‘ooooohs’. But I am glad you are able to control it, even if it is from nasty meds :(. I’m so glad you found me and look forward to following your journey too. Too many Debbie Downers out there and I think it would be an easy path to go down so it’s nice to meet people with a great attitude!

      • haha, I know, I forget about how my looks have changed.. (and it doesn’t seem quite as bad in the mirror), but then I see a picture or something, and am like ‘wow!’
        I’m happy to have found your blog too; even if people have different conditions, there’s a lot of similar struggles with a ton of very different chronic illnesses… so just being able to read others’ stories is nice.. it reminds you you’re not alone when you need it, and I find sort of helps with keeping your spirits up. Like, I get down too, for sure, and have my really low points, but then I always make it my mission to get past that.. it is a constant battle, but I think we’re stronger for it 🙂

      • You’re right, it is a constant battle and I think being in the not knowing stage is getting me down. The blog really helps lift my spirits, thank goodness!!

      • Yea, not knowing is awful.. I’ve found that with a lot of things – I’m always like “just tell me”, I don’t really care how bad, or what it is, I’d just rather know, so that I can start dealing with it..

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